Comments on: Autism… http://www.letstalkhealthcare.org/uncategorized/autism/ Wed, 07 Jan 2009 00:15:00 +0000 http://wordpress.org/?v=2.5.1 By: D. Myer http://www.letstalkhealthcare.org/uncategorized/autism/#comment-4063 D. Myer Thu, 11 Oct 2007 13:20:32 +0000 http://www.letstalkhealthcare.org/?p=130#comment-4063 Charlie, Thank you, thank you, thank you for listening! In year 4 of dealing with my child's challenges, we hired an au pair to help. He has since learned that there is no programming private or state funded to help the children and families struggling with ASD in his home country in Central Europe. Those children, human beings, are put in institutions as they are thought to be uneducable. We've learned in the US that these children can be educated and can be productive members of society. It seems a basic human right that is denied by many insurance companies. Charlie,
Thank you, thank you, thank you for listening!
In year 4 of dealing with my child’s challenges, we hired an au pair to help. He has since learned that there is no
programming private or state funded to help the children and families struggling with ASD in his home country in Central Europe. Those children, human beings, are put in institutions as they are thought to be uneducable. We’ve learned in the US that these children can be educated and can be productive members of society. It seems a basic human right that is denied by many insurance companies.

]]> By: Kathleen D. http://www.letstalkhealthcare.org/uncategorized/autism/#comment-4059 Kathleen D. Wed, 10 Oct 2007 17:20:18 +0000 http://www.letstalkhealthcare.org/?p=130#comment-4059 Charlie---My now 16 y.o. nephew fell into the category of: "while other forms are noticeable, but do not negatively affect someone’s ability to lead and live a productive life" ; As a baby it took years of testing, doctor's visits and no answers, until one MD finally said, "It must be a form of autism"........ He's happy, productive, (he can recite the back of a baseball card w/ the stats of any baseball player) and recently got his drivers license! The book to which you referred was an amazing read! Charlie—My now 16 y.o. nephew fell into the category of: “while other forms are noticeable, but do not negatively affect someone’s ability to lead and live a productive life” ; As a baby it took years of testing, doctor’s visits and no answers, until one MD finally said, “It must be a form of autism”…….. He’s happy, productive, (he can recite the back of a baseball card w/ the stats of any baseball player) and recently got his drivers license! The book to which you referred was an amazing read!

]]> By: Ken Roberts http://www.letstalkhealthcare.org/uncategorized/autism/#comment-4055 Ken Roberts Wed, 10 Oct 2007 13:12:53 +0000 http://www.letstalkhealthcare.org/?p=130#comment-4055 The incidence rates are climbing. When 1 in 150 is really 1 in 67. Vaccine Autoimmune Project Publication excerpt: Since February 2007, news outlets have widely publicized the fact that recently released figures by the CDC have estimated the prevalence of autism and autistic spectral disorders at a NEW high of 1 in 150. In this report, VAP's co-founder Ray Gallup and Dr. Yazbak examine the most recent United States Department of Education statistics and reveal that the 1 in 150 estimate is outdated by five years. They report that the present prevalence of ASD may be as high as 1 in 67. We at the Vaccine Autoimmune Project are saddened and concerned to see the latest Department of Education figures. We are also concerned about what is to come. It is evident that, 1) our medical authorities are more interested in defending vaccination programs than controlling autism, the most devastating and real epidemic we have faced in a hundred years, and 2) our wealthiest and largest autism association is giving little attention to the role of vaccines and vaccine additives and preservatives. Read the full, eye-opening story here http://www.vaproject.org/yazbak/1-in-150-is-really-1-in-67-20071005.htm The incidence rates are climbing. When 1 in 150 is really 1 in 67.

Vaccine Autoimmune Project Publication excerpt:
Since February 2007, news outlets have widely publicized the fact that recently released figures by the CDC have estimated the prevalence of autism and autistic spectral disorders at a NEW high of 1 in 150. In this report,
VAP’s co-founder Ray Gallup and Dr. Yazbak examine the most recent United States Department of Education statistics and reveal that the 1 in 150 estimate is outdated by five years. They report that the present prevalence
of ASD may be as high as 1 in 67. We at the Vaccine Autoimmune Project are saddened and concerned to see the latest Department of Education figures.
We are also concerned about what is to come. It is evident that, 1) our medical authorities are more interested in defending vaccination programs than controlling autism, the most devastating and real epidemic we have
faced in a hundred years, and 2) our wealthiest and largest autism association is giving little attention to the role of vaccines and vaccine additives and preservatives.

Read the full, eye-opening story here
http://www.vaproject.org/yazbak/1-in-150-is-really-1-in-67-20071005.htm

]]> By: Anonymous http://www.letstalkhealthcare.org/uncategorized/autism/#comment-4037 Anonymous Tue, 09 Oct 2007 15:17:24 +0000 http://www.letstalkhealthcare.org/?p=130#comment-4037 "The Centers for Disease Control and Prevention puts it at about 6-7 kids per 1,000, while others have said it’s as high as 1 out of 100." Just wanted to point out that the CDC's estimate of 6-7 kids per 1,000 is around 1 in 150 kids - not too far off from 1 in 100. “The Centers for Disease Control and Prevention puts it at about 6-7 kids per 1,000, while others have said it’s as high as 1 out of 100.”

Just wanted to point out that the CDC’s estimate of 6-7 kids per 1,000 is around 1 in 150 kids - not too far off from 1 in 100.

]]> By: Charlie Baker http://www.letstalkhealthcare.org/uncategorized/autism/#comment-4031 Charlie Baker Mon, 08 Oct 2007 21:37:47 +0000 http://www.letstalkhealthcare.org/?p=130#comment-4031 Tom - thanks for your post. My friend's comments were eye-opening, to say the least. Tom - thanks for your post. My friend’s comments were eye-opening, to say the least.

]]> By: Tom Hubbard http://www.letstalkhealthcare.org/uncategorized/autism/#comment-4012 Tom Hubbard Wed, 03 Oct 2007 16:09:10 +0000 http://www.letstalkhealthcare.org/?p=130#comment-4012 I regret that I only spotted your post on autism just now, three weeks after you wrote it. Thank you for an astute summary of autism and its impact on families. As the father of an autistic 20-year old, I certainly recognized much of life as we know it in my household, where we refer to autism as a 24/7 audience participation disability. It seems likely that many of the most important data points on autism spectrum disorders - including true trends in prevalence - will remain uncertain for some period of time. Continuing advances in brain science and continuing changes in diagnoses will see to that. What is absolutely clear, however, is that autism spectrum disorders are generating a significant new wave of need, particularly a need for safe and sound human services for autistic adults. The state is barely equipped to understand these needs, much less to serve them. Many autism support and service groups in Massachusetts have now come together under an umbrella group, Advocates for Autism of Massachusetts (AFAM), in order to promote safe, sound, statewide policies to meet what has been called the approaching 'tsunami' of autism-related service demands in Massachusetts. I'd encourage all parents, providers, and educators with a stake in this to check out AFAM at www.afamaction.org Thanks again for writing about this ! I regret that I only spotted your post on autism just now, three weeks after you wrote it.
Thank you for an astute summary of autism and its impact on families. As the father of an autistic 20-year old, I certainly recognized much of life as we know it in my household, where we refer to autism as a 24/7 audience participation disability.
It seems likely that many of the most important data points on autism spectrum disorders - including true trends in prevalence - will remain uncertain for some period of time. Continuing advances in brain science and continuing changes in diagnoses will see to that.
What is absolutely clear, however, is that autism spectrum disorders are generating a significant new wave of need, particularly a need for safe and sound human services for autistic adults.
The state is barely equipped to understand these needs, much less to serve them. Many autism support and service groups in Massachusetts have now come together under an umbrella group, Advocates for Autism of Massachusetts (AFAM), in order to promote safe, sound, statewide policies to meet what has been called the approaching ‘tsunami’ of autism-related service demands in Massachusetts.
I’d encourage all parents, providers, and educators with a stake in this to check out AFAM at http://www.afamaction.org
Thanks again for writing about this !

]]> By: Retty http://www.letstalkhealthcare.org/uncategorized/autism/#comment-3951 Retty Thu, 13 Sep 2007 15:58:16 +0000 http://www.letstalkhealthcare.org/?p=130#comment-3951 When explaning it like that you can see how hard something like that can be. When explaning it like that you can see how hard something like that can be.

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